International Society for the Study of Vulvovaginal Disease (ISSVD)
A global, multidisciplinary nonprofit scientific society dedicated to advancing the understanding, diagnosis, and treatment of vulvar and vulvovaginal conditions.

Despite being a visible and vital part of the female body the Vulva remains surrounded by stigma and silence. Many women have never been taught the word, let alone how to recognise changes, symptoms or warning signs that something may be wrong.
I know this firsthand. More than 30 years ago I was diagnosed with Vulva cancer. At that time there was little public education, limited awareness among women, and almost no open conversation. Today, while medicine has advanced, the silence too often remains, and that silence can delay diagnosis, treatment and healing.
Vulva cancer is described as “rare” but in reality, it’s rarely talked about. Persisting itching, lichen sclerosus, skin changes, lumps, ulcers or burning are frequently dismissed, normalised or quietly endured. Some women are told it’s “just aging”, “just hormones”, or “just a skin condition”. Others feel embarrassed to raise concerns at all.
As the founder of International Gynaecological Awareness Day (IGAD), this day exists for one powerful reason, to shine a light on the gynaecological health issues that remain hidden, misunderstood or ignored. Vulva health is one of them.
Vulva health is not only about cancer, but also about dignity, sexuality, pelvic health, mental wellbeing, and the right to understand and advocate for our own bodies.
Platforms like Women’s Health Pathway play a critical role in changing outcomes bringing together evidence-based resources and real stories and creating space where care is not just clinical but deeply human.
When we name the Vulva we legitimise it. When we talk openly, we break the stigma. When we share our lived experience with others symptoms can be recognised earlier, enabling them to seek help sooner. Education saves lives. Conversations save lives.
Let’s keep this important conversation going, for ourselves, for each other and for the women who came before us and whose voices were never heard.
Kath Mazzella OAM
Vulva cancer survivor & women’s health advocate, IGAD founder igad.kathmazzella.com
Caused by imbalance in vaginal bacteria.
Blockage or infection of the Bartholin’s glands near the vaginal opening, leading to swelling, pain, or pus collection.
Skin conditions that can affect the vulva, causing redness, itching, scaling, or irritation.
(GSM) is the modern medical term that combines what used to be called vulvovaginal atrophy and atrophic vaginitis. It describes the collection of symptoms that occur when estrogen levels drop after menopause, leading to changes in the vagina, vulva, bladder, and urinary tract.
An inflammatory condition that can affect the vulva and vagina, causing erosions, sores, or white streaks.
A chronic skin disorder that causes white, thin, crinkled patches around the vulva and anus.
Chlamydia, gonorrhoea, trichomonas, herpes, and HPV can all affect vaginal health.
Thrush is a condition that occurs when the yeast Candida albicans grow excessively. This yeast is normally present in the bowel and in small amounts within the vagina, where it usually causes no problems.
General inflammation of the vagina, often linked to infections, irritants, or hormonal changes.
Vaginismus happens when the muscles around the vagina tighten on their own, making it difficult or painful to insert anything.
Symptoms can be subtle at first and are often mistaken for common skin conditions. It’s important to pay attention to changes that persist or feel unusual for you. These may include:
These symptoms don’t automatically mean cancer, but they do deserve attention. If something feels different, uncomfortable, or persistent, seeking medical advice is advised.
Vulvar varicosities are enlarged veins that appear on the vulva, most commonly during pregnancy. They can look swollen or bulging and may cause aching, pressure, or discomfort especially after standing for long periods.
Most vulvar varicosities are temporary and resolve after childbirth. However, if symptoms are severe, interfere with daily life, or you’re unsure what you’re experiencing, a healthcare provider can offer reassurance and guidance.
Chronic vulval pain, burning, or discomfort without a clear cause. It can be persistent or provoked by touch.
Organisations that specialise in vaginal and vulval health
A global, multidisciplinary nonprofit scientific society dedicated to advancing the understanding, diagnosis, and treatment of vulvar and vulvovaginal conditions.

Empowering everyone with vulval lichen sclerosus (LS) to learn about the condition, access the right treatment and live more comfortably.

This website has been created to help sufferers of Lichen Sclerosus and those who believe they may have it. We are also hoping this website will help us to raise awareness for this condition.

A confidential service for people living with vestibulodynia (previously known as vulval vestibulitis), vulvodynia or other vulval pain conditions. The Society was set up in 1996 by a doctor and a nursing sister. The VPS is not externally funded or attached to any health service organisation.

We are a true multidisciplinary society largely made up from the specialties of gynaecology, dermatology, genito-urinary medicine and pathology. Our membership consists of doctors and nurses and we work closely with allied health professionals aligned to vulval disease.

I set up Thrush Support website so that no woman has to go through what I have been through. A severe thrush infection left me with neurological damage in my vulvar vestibule, which took just under 2 years to diagnose.

The Labia Library is an initiative of Women's Health Victoria (WHV), an independent, feminist, not-for-profit women's health promotion, advocacy and support service with a proud history of more than 30 years.
These patient information leaflets (PILs) are specially written by the BAD to help you understand more about a particular skin condition. They inform you what the condition is, what causes it, what can be done about it and where you can find out more information about it.

A USA-based resource website for women suffering from chronic vulvovaginal candidiasis (CVVC). This condition is often diagnosed as 'vulvodynia', with chronic pain starting after a yeast infection, and it is very painful and underdiagnosed. The website provides comprehensive information about disease pathology, symptoms, common misdiagnoses, and treatment.

The Counterpart Navigator app is your stepping stone to finding good quality, current information on a range of cancer-related topics from reputable sources.

The Counterpart Navigator app is your stepping stone to finding good quality, current information on a range of cancer-related topics from reputable sources.
Vaginal yeast infections (vulvovaginal candidiasis, or VVC) affect an estimated 75% of women at least once during their lifetime. These infections are caused by the yeast organism candida, which is normally found in the vagina but can sometimes overgrow.

Online support groups for vaginal and vulva health
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Each month, we share evidence-based resources, personal stories, and multidisciplinary insights to support your health journey without shame, without stigma.
