
Lichen Sclerosus & Vulval cancer UK Awareness
This website has been created to help sufferers of Lichen Sclerosus and those who believe they may have it.
Far too many below-the-waist female health conditions remain shrouded in silence. Many women suffer in silence with health needs that remain unspoken, underrecognized, underacknowledged, and under addressed. Women are hungry for hope. Pelvic organ prolapse alone impacts 50% of women world-wide, yet POP awareness barely exists prior to diagnosis. Considering childbirth and menopause are the leading POP causes, the lack of open discussion regarding women’s most private health needs falls far short.
Tackling shortfalls in women’s health is not optional, it is essential. Building bridges among key stakeholders is critical to spark evolution in women’s health awareness,screening, practice, and policy. Patients and those who engage in women’s healthcare and advocacy must band together to stimulate forward momentum within the female health arena. It is imperative we explore and expand meaningful, real-world solutions to address insufficient women’s health awareness and eradicate health stigma. As all sectors band together to stimulate open conversation within the female health arena,the world at large will recognize the diverse and intrusive quality-of-life impacts of health stigma and silence to women’s lives.
I encourage women to talk out loud about their health journeys with their daughters, sisters, mothers, friends, and constituents. I encourage women to dance through the Women’s Health Pathway website to capture valuable insights to advance their health awareness. And I encourage women to explore the information shared on APOPS website if they are experiencing tissues bulging out of the vagina, chronic constipation, incontinence, or pain with intimacy. We must advance women’s health side by side.
Every Voice Matters,
Sherrie Palm, Founder Association for Pelvic Organ Prolapse Support www.pelvicorganprolapsesupport.org
Pelvic organ prolapse occurs when one or more of the pelvic organs (bladder, uterus, rectum, or small bowel) drop from their normal position and bulge into the vagina. This happens when the muscles and tissues that support these organs become weakened or stretched.
Cystocele (Anterior Prolapse)
Uterine Prolapse
Rectocele (Posterior Prolapse)
Enterocele
Grade 1 (Mild)
Grade 2 (Moderate)
Grade 3 (Severe)
Grade 4 (Complete)
Your pelvic organs are supported by a complex system of muscles, ligaments, and connective tissue called the pelvic floor. This “hammock” of support:
Pelvic floor muscles: Form the foundation of support, contracting and relaxing to control organ position
Ligaments and fascia: Connective tissues that hold organs in place
Vaginal walls: Provide structural support between organs
When this support system weakens or becomes damaged, organs can shift from their normal position and create a bulge or prolapse.
Childbirth: Vaginal delivery can stretch and damage supporting tissues
Aging: Natural weakening of muscles and connective tissue
Hormonal changes: Reduced estrogen after menopause affects tissue strength
Chronic straining: From constipation, chronic cough, or heavy lifting
Genetics: Some women have naturally weaker connective tissue
Remember: Prolapse is very common, affecting up to 50% of women who have had children. Many women have mild prolapse without realizing it, and effective treatments are available for all grades of prolapse.
Prolapse symptoms vary depending on which organs are affected and the severity of the prolapse. Some women have no symptoms, while others experience significant discomfort that affects daily life.
Visible or palpable bulge
Pelvic pressure and heaviness
Back and abdominal discomfort
Urinary problems
Changes in urination patterns
Bowel movement difficulties
Sexual discomfort
Partner concerns
Activity limitations
Emotional symptoms
Many prolapse symptoms follow a pattern:
Seek prompt medical attention if you experience:
Schedule a routine appointment for:
Remember: Even mild prolapse symptoms are worth discussing with your healthcare provider. Early intervention can prevent worsening and improve quality of life.
Understanding the causes and risk factors for pelvic organ prolapse empowers you to take preventive measures and make informed decisions about your pelvic health.
Childbirth and pregnancy
Hormonal changes
Aging
Chronic straining activities
Weight management
Lifestyle factors
Genetic factors
Medical conditions
Demographic factors
Strengthen your pelvic floor
Healthy lifestyle habits
Exercise modifications
During pregnancy
After childbirth
During menopause
Occupational considerations
Remember: While some risk factors cannot be changed, many can be modified through lifestyle choices and preventive care. Early intervention with pelvic floor strengthening can be highly effective in preventing prolapse development or progression.
Medical terminology around prolapse can be overwhelming. This guide breaks down common terms you might hear when discussing pelvic organ prolapse with healthcare providers.
Cystocele
Rectocele
Uterine Prolapse
Enterocele
Vaginal Vault Prolapse
Pelvic Floor
Levator Ani
Fascia
Perineum
POP-Q (Pelvic Organ Prolapse Quantification)
Baden-Walker Classification
Dynamic MRI
Defecography
Pessary
Anterior Repair (Anterior Colporrhaphy)
Posterior Repair (Posterior Colporrhaphy)
Hysterectomy
Sacrocolpopexy
Sacrospinous Fixation
Biofeedback
Electrical Stimulation
Internal Assessment
Kegel Exercises
Asymptomatic
Symptomatic
Recurrent
Remember: Don’t hesitate to ask for clarification on any medical terms. Understanding your specific type and grade of prolapse is crucial for making informed treatment decisions.
Organisations that specialise in prolapse information and support
This website has been created to help sufferers of Lichen Sclerosus and those who believe they may have it.
We are a true multidisciplinary society largely made up from the specialties of gynaecology, dermatology, genito-urinary medicine and pathology. Our membership consists of doctors and nurses and we work closely with allied health professionals aligned to vulval disease.
Association for Pelvic Organ Prolapse Support is a USA-based nonprofit advocacy agency that was founded in September 2010. We support women navigating the stigma and symptoms of pelvic organ prolapse, while leading the charge for improvement of POP understanding and patient outcomes.
On January 19, 1911, Mrs. Alfred Birdsall delivered the first baby at a makeshift hospital in the home of Christopher Lyman Magee. Today, UPMC Magee-Womens Hospital is a regional and national leader in women's and infants' health care.
We are on a mission to help you KNOW YOUR (pelvic) FLOORS.
myPFM is a nonprofit organisation whose mission is to share hope and healing with the world through pelvic health education.
You are not alone; be inspired by real women's stories
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Each month, we share evidence-based resources, personal stories, and multidisciplinary insights to support your health journey without shame, without stigma.